We have established cooperation with a patient organization in Slovakia
We are pleased to announce that we have established cooperation with the Slovak patient organization Civic Association Tay-Sachs SK, which supports patients with Tay-Sachs disease and other forms of GM2 gangliosidosis and their families in Slovakia.
The aim of the association is to connect patients and their loved ones, raise awareness of this rare disease, cooperate with experts and defend the interests of patients.
At the same time, the organization helps families in finding the necessary medical, rehabilitation and social support.
The organization's website is currently under construction.
Those interested can already use the contact details provided in the information leaflet or contact the contact person Mgr. Anita Molnárová, by e-mail
We believe that mutual cooperation will contribute to better information, sharing of experiences and support for families living with Tay-Sachs disease in the Czech Republic and Slovakia.
